AHRI ClinicLink Individual Visits:January 2017 - September 2020
South Africa, 2017 - 2020
Kobus Herbst, Mark Siedner, Willem Hanekom
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October 29, 2020
Last modified
October 29, 2020
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Identification
Survey ID Number
AHRI.ClinicLink.Individual.Visits.v2
Title
AHRI ClinicLink Individual Visits:January 2017 - September 2020
Country
| Name | Country code |
|---|---|
| South Africa | ZA |
Abstract
ClinicLink is an electronic data collection system used to record all patients' visits to the 11 clinics located in the AHRI Population Intervention Programme (PIP) study area. The system was implemented in 2017 to assist clinical research assistants (CRAs) stationed in these clinics to capture reasons for clinic attendance. ClinicLink database for each of the clinics is linked to a central ClinicLink database through ongoing replication process. On a daily basis the PIP surveillance database is synchronised with the central ClinicLink database, allowing CRAs access to an up to date list of individuals to search in ClinicLink. Individuals are searched using individual identifiers such as first names, surnames, date of birth, sex and South African civilian identifiers. Deterministic and fuzzy match approaches are used to search for the individuals in the database. Verification is done to ensure that the individual is correctly linked by checking with the individual to name the household members who form part of the household they are part of.
Kind of Data
The Cliniclink Data is anonymised and mainly contains demographic data such as age, sex, date and time of visit, name of the clinic, reason for clinic attendance and whether or not the individual is linked to PIP database. Each record is a visit reason (VisitId) that each individual has made to the clinic. Individuals can visit the clinic for more than one reason and will then have multiple records in the dataset for the visit identified by the dame VisitId. Patient Id is a sequential number used to denote all visits which belong to one individual
Unit of Analysis
Each record is a visit reason per visit (VisitId) that each individual has had. Patient id is a sequential number used to denote all visits which belong to one individual.
Version
Version Description
v2.0.0
Scope
Topics
| Topic | Vocabulary | URI |
|---|---|---|
| HIV infection; tuberculosis; non-communicable diseases; South Africa; population health; demographic and health survey; Clinic visits; population linkage | AHRI | www.ahri.org |
Keywords
| Keyword | Vocabulary | URI |
|---|---|---|
| HIV infection; tuberculosis; non-communicable diseases; South Africa; population health; demographic and health survey; Clinic visits; population linkage | AHRI | www.ahri.org |
Coverage
Geographic Coverage
uMkhanyakude district in northern KwaZulu-Natal
Universe
All individuals across all ages accessing care in the 11 clinics located within AHRI PIP. The clinics are:
Esiyembeni Clinic
Gunjaneni Clinic
Hluhluwe Clinic
KwaMsane Clinic
Machibini Clinic
Madwaleni Clinic
Mpukunyoni Clinic
Mtubatuba Clinic
Nkundusi Clinic
Ntondweni Clinic
Somkhele Clinic
Esiyembeni Clinic
Gunjaneni Clinic
Hluhluwe Clinic
KwaMsane Clinic
Machibini Clinic
Madwaleni Clinic
Mpukunyoni Clinic
Mtubatuba Clinic
Nkundusi Clinic
Ntondweni Clinic
Somkhele Clinic
Producers and sponsors
Primary investigators
| Name | Affiliation |
|---|---|
| Kobus Herbst | AHRI |
| Mark Siedner | AHRI/MGH |
| Willem Hanekom | AHRI |
Producers
| Name |
|---|
| Africa Health Research Institute |
Funding Agency/Sponsor
| Name | Abbreviation | Role |
|---|---|---|
| Wellcome Trust | WT | Core funding |
| SAPRIN | SAPRIN |
Other Identifications/Acknowledgments
| Name | Affiliation | Role |
|---|---|---|
| Dickman Gareta | AHRI | Head of Research Data Management |
| Siphephelo Dhlamini | AHRI | Research Nursing Manager |
| Thandeka Khoza | AHRI | Clinical Research Platform Managerr |
| Patrick Gabela | AHRI | Clinical Research Coordinator |
Sampling
Sampling Procedure
All individuals across all ages accessing care in the 11 clinics located within AHRI PIP
Data Collection
Dates of Data Collection
| Start | End |
|---|---|
| 2017-01-01 | 2020-09-30 |
Access policy
Access conditions
The representative of the Receiving Organization agrees to comply with the following conditions:
1. Access to the restricted data will be limited to the Lead Researcher and other members of the research team listed in this request.
2. Copies of the restricted data or any data created on the basis of the original data will not be copied or made available to anyone other than those mentioned in this Data Access Agreement, unless formally authorized by the Data Archive.
3. The data will only be processed for the stated statistical and research purpose. They will be used for solely for reporting of aggregated information, and not for investigation of specific individuals or organizations. Data will not in any way be used for any administrative, proprietary or law enforcement purposes.
4. The Lead Researcher must state if it is their intention to match the restricted microdata with any other micro-dataset. If any matching is to take place, details must be provided of the datasets to be matched and of the reasons for the matching. Any datasets created as a result of matching will be considered to be restricted and must comply with the terms of this Data Access Agreement.
5. The Lead Researcher undertakes that no attempt will be made to identify any individual person, family, business, enterprise or organization. If such a unique disclosure is made inadvertently, no use will be made of the identity of any person or establishment discovered and full details will be reported to the Data Archive. The identification will not be revealed to any other person not included in the Data Access Agreement.
6. The Lead Researcher will implement security measures to prevent unauthorized access to licensed microdata acquired from the Data Archive. The microdata must be destroyed upon the completion of this research, unless the Data Archive obtains satisfactory guarantee that the data can be secured and provides written authorization to the Receiving Organization to retain them. Destruction of the microdata will be confirmed in writing by the Lead Researcher to the Data Archive.
7. Any books, articles, conference papers, theses, dissertations, reports, or other publications that employ data obtained from the Data Archive will cite the source of data in accordance with the citation requirement provided with the dataset.
8. An electronic copy of all reports and publications based on the requested data will be sent to the Data Archive.
9. The original collector of the data, the Data Archive, and the relevant funding agencies bear no responsibility for use of the data or for interpretations or inferences based upon such uses.
10. This agreement will come into force on the date that approval is given for access to the restricted dataset and remain in force until the completion date of the project or an earlier date if the project is completed ahead of time.
11. If there are any changes to the project specification, security arrangements, personnel or organization detailed in this application form, it is the responsibility of the Lead Researcher to seek the agreement of the Data Archive to these changes. Where there is a change to the employer organization of the Lead Researcher this will involve a new application being made and termination of the original project.
12. Breaches of the agreement will be taken seriously and the Data Archive will take action against those responsible for the lapse if willful or accidental. Failure to comply with the directions of the Data Archive will be deemed to be a major breach of the agreement and may involve recourse to legal proceedings. The Data Archive will maintain and share with partner data archives a register of those individuals and organizations which are responsible for breaching the terms of the Data Access Agreement and will impose sanctions on release of future data to these parties.
1. Access to the restricted data will be limited to the Lead Researcher and other members of the research team listed in this request.
2. Copies of the restricted data or any data created on the basis of the original data will not be copied or made available to anyone other than those mentioned in this Data Access Agreement, unless formally authorized by the Data Archive.
3. The data will only be processed for the stated statistical and research purpose. They will be used for solely for reporting of aggregated information, and not for investigation of specific individuals or organizations. Data will not in any way be used for any administrative, proprietary or law enforcement purposes.
4. The Lead Researcher must state if it is their intention to match the restricted microdata with any other micro-dataset. If any matching is to take place, details must be provided of the datasets to be matched and of the reasons for the matching. Any datasets created as a result of matching will be considered to be restricted and must comply with the terms of this Data Access Agreement.
5. The Lead Researcher undertakes that no attempt will be made to identify any individual person, family, business, enterprise or organization. If such a unique disclosure is made inadvertently, no use will be made of the identity of any person or establishment discovered and full details will be reported to the Data Archive. The identification will not be revealed to any other person not included in the Data Access Agreement.
6. The Lead Researcher will implement security measures to prevent unauthorized access to licensed microdata acquired from the Data Archive. The microdata must be destroyed upon the completion of this research, unless the Data Archive obtains satisfactory guarantee that the data can be secured and provides written authorization to the Receiving Organization to retain them. Destruction of the microdata will be confirmed in writing by the Lead Researcher to the Data Archive.
7. Any books, articles, conference papers, theses, dissertations, reports, or other publications that employ data obtained from the Data Archive will cite the source of data in accordance with the citation requirement provided with the dataset.
8. An electronic copy of all reports and publications based on the requested data will be sent to the Data Archive.
9. The original collector of the data, the Data Archive, and the relevant funding agencies bear no responsibility for use of the data or for interpretations or inferences based upon such uses.
10. This agreement will come into force on the date that approval is given for access to the restricted dataset and remain in force until the completion date of the project or an earlier date if the project is completed ahead of time.
11. If there are any changes to the project specification, security arrangements, personnel or organization detailed in this application form, it is the responsibility of the Lead Researcher to seek the agreement of the Data Archive to these changes. Where there is a change to the employer organization of the Lead Researcher this will involve a new application being made and termination of the original project.
12. Breaches of the agreement will be taken seriously and the Data Archive will take action against those responsible for the lapse if willful or accidental. Failure to comply with the directions of the Data Archive will be deemed to be a major breach of the agreement and may involve recourse to legal proceedings. The Data Archive will maintain and share with partner data archives a register of those individuals and organizations which are responsible for breaching the terms of the Data Access Agreement and will impose sanctions on release of future data to these parties.
Citation requirements
Herbst, K., Siedner, M. and Hanekom, W. (2020) “ClinicLink Individual Visits: January 2017 - September 2020.” Africa Health Research Institute (AHRI). doi: 10.23664/AHRI.CLINICLINK.INDIVIDUAL.VISITS.V2
Metadata production
DDI Document ID
DDI.AHRI.ClinicLink.Individual.Visits.v2
Producers
| Name | Abbreviation |
|---|---|
| Africa Health Research Institute | AHRI |