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An evaluation of a combined psychological and parenting intervention for HIV-positive women depressed in the perinatal period, to enhance child development and reduce maternal depression: Study Protocol for the Insika Yomama Cluster Randomised Controlled

South Africa, 2018 - 2023
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Reference ID
AHRI.Insika.Yomama.dataset
Producer(s)
Tamsen Rochat, Alan Stein, Samukelisiwe Dube, Kobus Herbst, Cecilia A. Hoegfeldt, Stephanie Redinger, Thandeka Khoza, Ruth Margret Bland, Linda Richter, Louise Linsell, Chris Desmond, Aisha K. Yousafzai, Michelle Craske, Ed Juszczak, Melanie Abas, Taygen Edwards, David Ekers
Metadata
Documentation in PDF DDI/XML JSON
Created on
Apr 10, 2026
Last modified
Apr 13, 2026
Page views
117

Data file: AHRI.InsikaYomama.TherapyDataset.20251215

Cases: 1447
Variables: 164

Variables

Id
Individual Identifier
TherapyCompletionDate
Form completion date:
Therapist
Therapist:
TheraphySetting
Is this therapy done
TherapySession
Is this therapy session done
SessionDate
Date of Session:
RatingDate
Date of Rating:
SessionNumber
Session Number:
RatingSource
Rating source:
FollowsAgenda
1. Established and Follows Agenda
NurturesActivation
2. Nurtures Activation
LearnsTogether
3. Learns Together
Nonjudgmental
4. Is Non-judgmental
Validates
5. Validates
Encourages
6. Encourages
ExpressWarmth
7. Naturally Express Warmth
BAModel
8. Use the BA Model
ReviewsHomework
9. Reviews Homework
AssessesProblems
10. Defines and Assesses Problems
ChangeTargets
11. Selects Promising Targets for Change
AppropriateStrategies
12. Selects Appropriate Strategies
AssignsHome
13. Assigns homework
AppliesStrategies
14. Applies Strategies Skillfully
Total
Total:
SpecialProblems
Did any special problems arise during the session (e.g., non-adherence to homewo
SpecialProblemsYes
If yes:
UnusualFactors
Were there any significant unusual factors in this session that you feel justifi
ClientDifficult
How difficult did you believe this client was to work with?
ClinicianRating
Overall in this session, how would you rate the clinician as a behavioral activa
HomeVisitDate
Form completion date
HomeVisit
Home visits
GettingThere
Getting there?
TimeToHomestead
Time to reach homestead?
ContextChange
Has anything changed in context since last session?
SessionPlace
Where did the session happen?
TherapyHappen
Did the therapy happen today as planned?
Incomplete
Incomplete
noAEorSAE
Did not do session (no AE/SAE)
AEorSAEPresent
Did not do session (AE/SAE present. E.g. Hospitalised for >5 days)
ParticipantNotThere
Participant not there
ParticipantReluctant
Participant reluctant to engage
FamilyInterference
Family interference
FamilyInBereavement
Family bereavement
MotherIll
Mother is ill
MotherDeceased
Mother deceased
BabyDeceased
Baby deceased
WeatherPreventedTherapy
Weather prevented therapy
EnvironmentalHazards
Environmental hazards (e.g. bees, snake bites, noise levels too high)
Other
Other
NormalProcedure
Did the session follow normal procedures?
TherapyBarriers
Barriers to therapy (session completed)
ContextSpace
Space (lack of privacy)
ContextTemperature
Temperature/weather
TimePressure
Time pressure
WorkResponsibilities
Work responsibilities
CryingBaby
Crying baby
TherapistDistracted
Distracted
TherapistIllhealth
Ill health
TherapistOther
Other
RiskFactorsChange
Has anything changed in risk and protective/profile factors?
RiskProfile
Risk profile:
RelationshipStatusChange
Change in relationship status since last visit?
DiagnosedHIVPositive
Newly diagnosed HIV positive and worried
MotherUndisclosedStatus
Mother not disclosed status to anyone
MotherStrugglingWithMeds
Mother struggling to take medication
UnplannedUnwantedPregnancy
Unplanned unwanted pregnancy
PlannedUnwantedPregnancy
Planned unwanted pregnancy
PhysicalSymptoms
Physical illness/symptoms
PartnerConflict
Partner conflict
FamilyConflict
Family conflict
FamilySubstanceAbuse
Substance abuse in family member(s)
ParticipantSubstanceAbuse
Substance abuse in participant
FoodInsecurity
Food insecurity
FinancialStress
Financial stress
Education
Education
TraumaExposure
Exposure to trauma
Hopelessness
Hopelessness
NosenseOfFuture
No sense of future (past suicide attempt but not currently suicidal)
OtherFactors
Other
HIVScale
Please rate severity of risk factor of newly diagnosed HIV positive and worried
IllnessScale
Please rate severity of risk factor of physical illness/symptoms on a scale of:1
PartnerConflictScale
Please rate severity of risk factor of partner conflict on a scale of:1 (not sev
FamilyConflictScale
Please rate severity of risk factor of family conflict on a scale of:1 (not seve
SubstanceAbuse
Please rate severity of risk factor of substance abuse in participant on a scale
FoodInsecurityScale
Please rate severity of risk factor of food insecurity on a scale of:1 (not seve
FinancialStressScale
Please rate severity of risk factor of financial stress on a scale of:1 (not sev
SchoolDropOut
Dropped out of school
NoAccessToEducation
No access to education
TraumaScale
Please rate severity of risk factor of exposure to trauma on a scale of: 1 (not
HopeOption
Please rate severity of risk factor of hopelessness on a scale of: 1 (not severe
NumberOfSuicideAttempt
If ticked the risk factor of no sense of future (past suicide attempt but not cu
SupportivePartner
Supportive partner
SupportiveFamilyMember
Supportive family member
Friends
Friends (social support)
Confidante
Confidante
DisclosedHIVStatus
Disclosed HIV status
SelfHarmThoughts
If thoughts of self-harm, willing to talk to friend/family about this
AdequateFinance
Adequate finance
EducationLevel
Level of education
SpiritualSupport
Spiritual support/belief
PlannedWantedPregnancy
Planned pregnancy, wanted
UnplannedWantedPregnancy
Unplanned pregnancy, wanted
ProtectiveOther
Other
TypeEmotional
Emotional
TypeFinancial
Financial
TypePractical
Practical
FamTypeEmotional
Emotional
FamTypeFinancial
Financial
FamTypePractical
Practical
FriendsEmotional
Emotional
FriendsFinancial
Financial
FriendsPractical
Practical
WorkOpportunitiesAccess
Access to work opportunities
ServicesKnowledge
Knowledge of services
RelationshipStatus
Relationship status:
RelationshipRating
Relationship rating:
FamConflict
Family conflict:
PaternityIssues
Paternity issues:
FamilyRestitution
Restitution to family:
MoodRating
Select participant mood rating (out of 10)
Assessment
Assessment
Routines
Routines
NourishingActivities
Nourishing activities
ProblemSolving
Problem solving
FuturePlanning
Planning for the future
OtherBooster
Other booster
AssessmentType
If clicked assessment, was it for:
TrackingFacialExpression
Tracking infant facial expression
TrackingVocalExpression
Tracking infant vocal expression
InfantContingentResponding
Infant contingent responding
LearnSongs
Learn songs and start using singing/speech to practice communicating with the in
ParentingModule
During the B.A. for parenting module (postnatal period), did you:
DiffNoDifficulties
No difficulties
DiffMotherRuminating
Mother was ruminating
DiffMotherHomework
Mother did not do homework
DiffMotherHungry
Mother was hungry
DiffMotherTherapyValue
Mother does not have value or goal after doing B.A. therapy
DiffSessionInCar
Had to do session in car
DiffMotherPracticeSkill
Mother did not want to practice skill (i.e. singing)
DiffOther
Other
PostNoDifficulties
No difficulties
PostBabyAsleep
Baby was asleep (post-natal)
PostMotherRuminating
Mother was ruminating
PostMotherHomework
Mother did not do homework
PostMotherHungry
Mother was hungry
PostMotherTherapyValue
Mother does not have value or goal after doing B.A. therapy
PostSessionInCar
Had to do session in car
PostMotherPracticeSkill
Mother did not want to practice skill (i.e. singing)
PostOther
Other
BASelf
B.A. Self
BAParenting
B.A. Parenting
SessionOther
Other
PsychologistReferal
Refer to psychologist
SocialWorkerReferal
Refer to social worker
ClinicReferal
Refer to clinic
TelephoneFollowup
Follow up with telephone call
RepeatSession
Repeat the session
ActionOther
Other
TherapyProcessDifficulties
Difficulties with therapy process
ModuleContentDifficulties
Difficulties with module content
MotherNotDepressed
Mother no longer depressed
InfantHealthConcern
Mother's concern about infant health
IssuesOther
Other
InfantDanger
Did you discuss the infant danger signs with the participant?
Total: 164
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