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Health literacy in Adolescents Living with HIV: Insights from a modified e-Delphi survey on self-management competencies from health and social care professionals in rural KwaZulu-Natal, South Africa

South Africa, 2023
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Reference ID
AHRI.ALHIVCompetencySurvey.2023.v1
Producer(s)
Nothando Ngwenya, Janet Seeley, Maryam Shahmanesh, Christina Psaros, Nelisiwe Mtshali, Nompilo Shelembe, Siphephelo Dlamini, Lusanda Mazibuko, Thandeka Smith
Metadata
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Created on
Jan 29, 2025
Last modified
Jan 29, 2025
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  • Identification
  • Version
  • Scope
  • Coverage
  • Producers and sponsors
  • Sampling
  • Data collection
  • Data processing
  • Access policy
  • Metadata production

    • Identification

    Survey ID number
    AHRI.ALHIVCompetencySurvey.2023.v1
    Title
    Health literacy in Adolescents Living with HIV: Insights from a modified e-Delphi survey on self-management competencies from health and social care professionals in rural KwaZulu-Natal, South Africa
    Country
    Name Country code
    South Africa ZA
    Abstract
    This study investigates the concept of health literacy among adolescents living with HIV (ALHIV) in KwaZulu-Natal, South Africa. It explores the determinants of health literacy and identifies self-management competencies necessary for effective HIV care. Using a modified e-Delphi survey with healthcare professionals and participatory methods with adolescents, the study aims to construct a culturally specific framework of health literacy for adolescents. Data collection includes qualitative interviews, group discussions, and surveys focusing on behavioural outcomes and cultural influences, guided by the COM-B framework and OpHeLiA approach.
    Kind of Data
    Survey data, qualitative interviews, participatory group discussions, and coded textual data
    Unit of Analysis
    Adolescents (ages 13-24) living with HIV, and healthcare professionals in rural and urban KwaZulu-Natal.

    Version

    Version Description
    v1.0.0

    Scope

    Topics
    Topic Vocabulary URI
    Health literacy, HIV self-management, adolescent health, cultural health competencies, behavioural change. Africa Health Research Institute
    Keywords
    Health literacy, HIV self-management, adolescent behaviour, KwaZulu-Natal, behaviour change wheel, COM-B model.

    Coverage

    Geographic Coverage
    KwaZulu-Natal Province, focusing on uMkhanyakude (rural) and eThekwini (urban) districts.
    Universe
    Adolescents and young adults living with HIV, aged 13-24, residing in KwaZulu-Natal for at least three months, able to provide informed consent or assent.

    Producers and sponsors

    Primary investigators
    Name Affiliation
    Nothando Ngwenya Africa Health Research Institute, KwaZulu-Natal, South Africa; School of Nursing and Public Health, University of KwaZulu-Natal, South Africa
    Janet Seeley Africa Health Research Institute, KwaZulu-Natal
    Maryam Shahmanesh Africa Health Research, KwaZulu-Natal, South Africa; School of Nursing and Public Health, University of KwaZulu-Natal, South Africa; Institute for Global Health, University College London, United Kingdom
    Christina Psaros Department of Psychiatry, Harvard Medical School, Massachusetts General Hospital, Boston, USA
    Nelisiwe Mtshali Africa Health Research Institute, KwaZulu-Natal
    Nompilo Shelembe Africa Health Research Institute, KwaZulu-Natal
    Siphephelo Dlamini Department of Health, KwaZulu-Natal, South Africa
    Lusanda Mazibuko Africa Health Research Institute, KwaZulu-Natal
    Thandeka Smith Africa Health Research Institute, KwaZulu-Natal, South Africa; School of Nursing and Public Health, University of KwaZulu-Natal, South Africa
    Producers
    Name
    Africa Health Research Institute
    Funding Agency/Sponsor
    Name Abbreviation
    University Center for AIDS Research (HU CFAR), an NIH funded program (P30 AI060354), which is supported by the following NIH Co-Funding and Participating Institutes and Centers: NIAID, NCI, NICHD, NIDCR, NHLBI, NIDA, NIMH, NIA, NIDDK, NINR, NIMHD, FIC, and OAR HU, CFAR, NIH, NIAID, NCI, NICHD, NIDCR, NHLBI, NIDA, NIMH, NIA, NIDDK, NINR, NIMHD, FIC, and OAR
    Other Identifications/Acknowledgments
    Name Affiliation Role
    Sweetness H Dube AHRI Data Documentation

    Sampling

    Sampling Procedure
    The sampling procedure for this Delphi study involved selecting survey respondents to represent the population based on convenience, heterogeneity, and expertise. While there is no consensus on the ideal sample size for a Delphi study, we adopted a pragmatic approach, considering the iterative nature of the method and the feasibility of access to healthcare professionals.

    To ensure a diverse and representative pool of judgments, we included all professionals who expressed interest in participating and met the criteria for being considered an 'expert.' Participants were drawn from various clinics, contributing to the heterogeneity of perspectives.

    The characteristics of the participants are detailed below:
    Round 1: 20 participants
    Round 2: 19 participants

    The professional groups included Certified Nurse Practitioners, Professional Nurses, Registered Nurses, Enrolled Nurses, Enrolled Nurse Assistants, Lay Counsellors, and Data Capturers.

    Participants were recruited from seven different clinics: Nkundusi, Madwaleni, Ntondweni, Kwamsane, Mpukunyoni, Esiyembeni, and Machibini Clinics.

    Data collection

    Dates of Data Collection
    Start End
    2023-03-01 2023-07-30

    Data processing

    Data Editing
    Additional processing involved developing the Delphi survey questionnaire on the RedCap platform and administering it through a mobile phone platform to ensure ease of access for participants. Each competency list, generated from literature and the qualitative study, was subdivided into categories, and the survey included both closed-ended Likert scale questions and open-ended comment sections for participant feedback.

    Access policy

    Access conditions
    Access to the data requires accurate completion of the online data access application form accessible on the AHRI Data repository(<https://data.ahri.org/>). Data users are required to abide by the data use conditions stipulated on the application for access to the data. Failure to do so may result in their data access privileges being revoked by the Data Custodian. In order to recognise the effort and intellectual contributions of AHRI investigators in producing and curating the data, users of AHRI data must acknowledge the source of the data and abide by the terms and conditions under which the data is accessed and must cite the dataset in publication using the citation provided as part of this documentation. All analytical datasets published on the AHRI Data Repository are assigned digital object identifier (DOIs) and the DOIs can be found on the Data Repository under Study Description tab - Access policy. AHRI data users are required to always cite the dataset using the relevant DOI.
    Citation requirements
    Ngwenya, N., Seeley, J., Shahmanesh, M., Psaros, C., Mtshali, N., Shelembe, N., Dlamini, S., Mazibuko, L., & Smith, T. (2025). Health literacy in Adolescents Living with HIV: Insights from a modified e-Delphi survey on self-management competencies from health and social care professionals in rural KwaZulu-Natal, South Africa [Data set]. Africa Health Research Institute. DOI:https://doi.org/10.23664/AHRI.ALHIVCompetencySurvey.2023

    Metadata production

    DDI Document ID
    DDI.ALHIVCompetencySurvey.2023.v1
    Producers
    Name Abbreviation
    Africa Health Research Institute AHRI
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